They do a lot of research for Holoprosencephaly and Related Malformations. They have a lot of information.
A lovely website that spreads HoPE and awareness about HPE.
This is my first post here on Our Sonshines. I wanted to start this blog to share more about our journey with Holoprosencephaly, which is Carsyn’s diagnosis, and with the few Sensory Issues we are dealing with, with Dustyn. I will share all about what we are doing to help Carsyn and what works to…
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