Special Pre-K Evaluation

April 23, 2013 | Sarah

Yesterday I took Carsyn to the school he will be going to once he turns three. See our CDSA services end at three years of age and he gets turned over to the school system. So we went in and they asked me a bunch of questions and tried to figure out all that Carsyn…
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Cerebral Palsy Clinic

March 14, 2013 | Sarah

Yesterday we took Carsyn to the Cerebral Palsy Clinic at Duke. It was a really great appointment, even if we got there two hours early. Big OPPS on my part!!! I had written down 10am as the appointment time but his appointment wasn’t until noon. So we had to wait two hours to see the…
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My Rock Star

January 25, 2013 | Sarah

If you all remember Carsyn went for a hip x-ray back in December you can read about that here. Well yesterday we met with the Orthopedic Surgeon and boy am I glad we picked him. I will call him Dr.R. He was amazing. Dr. R checked out Carsyn’s hip x-rays on the computer and said…
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Hip Update

December 12, 2012 | Sarah

Well last time we had Carsyn’s hip x-ray done his right hip was about 30% uncovered. This time his right hip was about 40-50% uncovered and his left hip was about 30% uncovered. Not good!! So we are scheduling an appointment with an orthopedic surgeon to see about doing some muscle releasing surgery in his…
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Video

Carsyn Taking His “First Steps”

Today was the very first day that Carsyn has propelled himself in his gait trainer. I am sooooo happy. Before he would require a push on the handle on the back. He sure made me proud and made me tear up. I have been waiting for this day for about a year and a half. What a wonderful gift on Thanksgiving! Grab the tissues.

Superman Carsyn in his Mustang

September 21, 2012 | Sarah

So excited that Carsyn finally got his gait trainer, which is called Mustang. It will take a while for him to get used to it. Right now he just stands there, but we will work on it. I have a month and 10 days till Halloween to get him walking. He does look pretty cute…
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Carsyn’s Gait Trainer!!

September 19, 2012 | Sarah

YAY! The company called me today and said they are delivering Carsyn’s gait trainer to our house tomorrow!! This is so awesome and unexpected, one they told me it wouldn’t be there till the 21st, two I was thinking I would have to drive up to Virginia to get it, and three I was thinking…
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Feelings from a Mom of a Superhero

September 17, 2012 | Sarah

First of all I wanted to say a quick thank you for your support on this blog. I am so happy that I have a place I can openly pour out my feelings about our struggles. I know this blog is pretty new and you may not have read some of the blog posts on…
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Link

The Carter’s Center for Brain Research

They do a lot of research for Holoprosencephaly and Related Malformations. They have a lot of information.

Families for HoPE

A lovely website that spreads HoPE and awareness about HPE.

Welcome!!

September 13, 2012 | Sarah

This is my first post here on Our Sonshines. I wanted to start this blog to share more about our journey with Holoprosencephaly, which is Carsyn’s diagnosis, and with the few Sensory Issues we are dealing with, with Dustyn. I will share all about what we are doing to help Carsyn and what works to…
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